Having seizures in Jackie Renfrow's family was very common; she and her children were treated for epilepsy for years. On April 15, 2000, Jackie received a call saying that her son, Jimmy, had died from having a seizure in his sleep, leaving behind a wife and daughter. Just two years later, her daughter, Crissy, died the same way on July 25, 2002, leaving behind an eight-month-old baby. Ten months later, Jackie's mother was rushed to the hospital for a heart conditon called Long QT Syndrome, which, if not treated, causes sudden cardiac arrest. Now, most of her family is being treated for this heart condition, including her granddaughters. Their story has been featured in serveral Indianapolis newpaper articles. She has also done several TV interviews for Indianapolis affiliates of ABC, CBS, NBC, and FOX. On Januray 22, 2009, she and a group of volunteers held their first cardiac screening for Perry Township School.
Jackie and her husband hope to harness the pain of losing her children and using it constructively to help others. Knowing that sudden cardiac arrest could happen to anyone's husband, wife, or sister, Jackie hopes that she and her chapter can build upon what they started in their cardiac screening in January. They hope to educate the public on the importance of AEDs and proper training on CPR and cardiac screening.
NEWS & EVENTS
Indiana Chapter SCAA donates AED to Broad Ripple High School at Close the Gap Crossroads Classic!
Butler University and Indiana University were not the only winners at the Close the Gap Crossroads Classic Basketball Tournament on December 18, 2011, but a local high school took away valuable lessons in CPR and an AED. The Indy Chapter SCAA donated an AED to Broad Ripple High School in Indianapolis.This doubleheader basketball tournament of Indiana's finest collegiate basketball programs was sponsored by Close the Gap, an educational initiative focused on cardiovascular care, heart health and sudden cardiac arrest awareness.
The Indy Chapter SCAA was able to make this Cardiac Science AED donation possible because of the generous donation of $1000 by associate sponsor, Subaru.
It was a great event. We were thrilled to have the opportunity to be able to help spread awareness of how sudden cardiac arrest can strike anyone, anywhere - even young, healthy athletes and how access to an AED can be the difference between life and death.
This is Jackie’s grandaughter Lexie Brackett, 13 years old. Lexie recently spoke on the death of her dad and Aunt and how she was saved last August. Lexie gave an impressive presentation and left a huge impact.
Heroes Honored for Saving Teen
Cathie Rowand | The Journal Gazette
Paramedic Michael Gillespie, left, with Three Rivers Ambulance Authority, who helped save the life of Tyler Byall, center, a year ago, was among those honored as heroes Friday at Parkview Heart Institute by the Indy Sudden Cardiac Arrest Association. On Sept. 20, 2010, Byall, then 17, went into cardiac arrest in his sleep. His mother, Kristi Polcsak, right, started CPR until paramedics arrived with an automated external defibrillator. Last month, Byall helped a North Side High School teacher with CPR to save the life of a North Side student.
Join the Sudden Cardiac Arrest Association & Oliver Winery as we raise money to save hoosier hearts! Playing a blend of blues, R & B and good old Rock 'n Roll, Mike Milligan & Steam Shovel from Kokomo, Indiana will be sure to entertain - all in the name of saving lives! Mike Milligan & Steam Shovel have entertained across the country and are regulars at the House of Blues in Chicago. It will be a guaranteed good time.
The evening will be filled with great wine, music & food. Oliver Winery will provide complimentary wine tasting. Learn about the importance of CPR and the importance of accessible AEDs. We'll also hear from a survivor of sudden cardiac arrest and present an AED to a local organization. All proceeds benefit the Indy Chapter Sudden Cardiac Arrest Association.
This will be an outdoor event and will be rain or shine. We hope that Mother Nature will provide us with a beautiful evening, but in the event of dangerous or very inclement weather, Oliver Winery & the Sudden Cardiac Arrest Association have the right to cancel the event. Unfortunately we will not be able to reschedule the event and will not be able to refund money. Money collected will be considered a donation to the Indy Chapter Sudden Cardiac Arrest Association and we will send you a receipt for tax purposes. Please be sure to provide complete and accurate contact information when purchasing your tickets.
We hope you will join us!
On March 16, 2011, the SCAA Indy Chapter donated an AED to Center Grove Football Stadium, 2011 Center Grove High School, 2717 South Morgantown Road, Greenwood, IN 46143.
The Indy Chapter made an AED donation and provided CPR & AED Training to Downey Church & Preschool on Jan 23, 2011.
Student Deaths Prompt Calls For Defibrillators, CPR Training
The recent deaths of two student athletes from cardiac arrest is renewing calls for defibrillators and CPR training in schools.
The funeral for a 16-year-old Michigan boy who collapsed and died after scoring the winning basket for his team last week was held Tuesday. Doctors said he had an enlarged heart that had gone undiagnosed.
For the past five years, Jackie Renfrow, of Indianapolis, has helped raise money to outfit schools with defibrillators following the deaths of her young son and daughter, who both suffered cardiac arrest in their sleep, 6News' Stacia Matthews reported.
"We have something called long QT, and I didn't find out until it was too late to save my children," she said.
To help save others, Renfrow has helped furnish six defibrillators, which cost $1,700 each, in central Indiana schools since January.
Savor a Taste for Life Fundraising Event – February 26
Spreading the Word About Cardiac Arrest
Southsider’s two children died from the disease after being misdiagnosed - Southside story
Jasper Indiana Middle School Walk
Walk for Faith - CPR & AED’S SAVE LIVES
Medical Professionals Honored For Saving Child
Several months ago, a middle school student went into cardiac arrest in the middle of soccer practice. It just so happened, three medical professionals were exercising nearby. Saturday, those heroes were honored.
The girl's name is Faith and medical professionals are calling her a miracle. The incident happened in January. Officials say, Faith is one of the few children ever known to survive cardiac arrest.
"I just can't thank them enough. There are no words that can describe how grateful I am they saved my daughter," said Cathy Fullington. Her daughter, 13-year-old Faith Sendelweck was practicing soccer in Jasper High School's gymnasium when she suddenly collapsed. "I don't remember anything I just woke up in the hospital," said Faith. What she doesn't remember is who saved her life. A nurse and respiratory therapist were in the gym working out nearby. They couldn't find a pulse and immediately started CPR. "Her head was just dangling down like a rag doll," said Vickie Beckman a nurse. It just so happens, Vickie's husband is a doctor and was also in the gym.
Principal Howards Award Ceremony: 6 Workers Awarded For Saving Principal's Life
Six employees at Lowell Elementary School in Warren Township were honored as heroes Wednesday for saving the life of their principal.
Walking for Dreams May 23, 2010 Indy Chapter
The Indy Chapter of the Sudden Cardiac Arrest Association will hold a fund-raising walk on May 23. The 5K Family & Pet Walk will start at the Canal at Buggs Temple, 337 W. 11th St., Indianapolis.
Registration will be from 1 to 2 p.m., according to a chapter news release. The walk, also named "Walking for Dreams," will start at 2 p.m. and ends at 3:30 p.m., when a ceremony will be held.
Register online at www.walkingfordreams.org. Also, donations made payable to IndyChapter/Sudden Cardiac Arrest Association can be mailed to the Indy Chapter/SCAA, 1111 Fiesta Dr., Franklin, IN 46131.
Places to park while attending the walk include REI-Gateway Plaza on 11th Street, between Senate and Capitol avenues, and Builders Association of Greater Indianapolis lot at 1011 Martin Luther King Jr. St., according to the news release.
Woman Looks to Aid After Tragedies
By Ryan Palence
After losing two of her children to Long QT Syndrome, a genetic cardiac disorder, an Indianapolis woman is taking action.
Jackie Renfrow's son Jimmy Brackett, 22, died April 15, 2000, and her daughter, Crissy Brackett, 21, died July 25, 2002. At the time of his death, Jimmy was married and had a 2 year old daughter named Alexis.
"They actually died in their sleep," Renfrow said. "With Long QT, that happens a lot. THey both had seizures in their sleep."
Though her children showed all of the symptoms of having the disorder, Renfrow said doctors had failed to diagnose them until it was too late.
"We had been misdiagnosed," she said. "Ten months after my daughter died, they found that my mom had Long QT Syndrome. She was the carrier, so now all of us have it except one sibling. It really slows down your heart rate. For years, we thought we had nerve porblems, but all along it was our hearts. It was nothing for one of us to just fall over with a seizure."
In addition to Renfrow, her mother, and her two children, her sister and her children also carry Long QT. Though the disorder is passed down genetically, it is not necessarily a death sentence.
"It's very preventable," Renfrow said. "It's not like a cancer and it's not terminal. You can get an internal defibrillator and what's called a beta blocker, which keeps the blood flowing smoothly."
Renfrow said heart screenings should be universal.
"I don't feel that it is important just for athletes to be screened," she said. "Every child should be screened. I would like to have a bill passed in Indiana that every public place has to have an AED with a plan of action. Everybody should know CPR. You never know what it's going to happen.
"I started a chapter for the Sudden Cardiac Arrest Association. They're based out of Washington, D.C. Of course my passion for doing this is because of the death of my kids."
Since estalishing the chapter here, Renfrow assists with fundraisers and cardiac screenings. One of the fundraisers is the 19th annual Holiday Craft Show, whchthis year runs from 9am to 4pm November 14 at the Hendricks County 4-H Fairgrounds in Danville. The event will be in the Hendricks Power Exposition Hall.
"(The event) is going to go toward cardiac training for AED placement in schools or other community placs," Renfrow said. "I'm trying to reach out to people whose child might have these symtpoms."
In addition, Renfrow is using the events to help spread the word.
"Now I am CPR certified, so now I need to get with the fire departments and schools to make sure that there are AED machines," Renfrow said. "I feel like students probably even need to learn CPR."
Indy Chapter Leader Highlighted in Hendricks County Flyer
After losing two children to a genetic cardiac disorder, Jackie Renfrow starts SCAA Indy Chapter to help others.
Renfrow lost two of her children to Long QT Syndrome, a genetic cardiac disorder. The Syndrome causes your heart rate to slow down. The loss of her two children has given her a mission: to have an AED placed in every public place in Indiana, and create awareness to help save others. Since establishing the SCAA Chapter Jackie has been assisting with fundraisers, and cardiac screenings. On November 14th, 2009, at the Hendricks County 4-H Fairgrounds in Danville, Indiana the 19th Annual Holiday Craft Show fundraiser will be held from 9am-4pm in the Hendricks Power Exposition Hall. Money raised from the event will go toward cardiac training and AED placement in schools or community places.
1111 Fiesta Dr
Franklin, IN 46131
Phone: (317) 736-7055
Alt. Phone: (317) 402-9186
E-mail Address: Jackie_Renfrow@yahoo.com
The Indy Chapter made an AED donation and provided CPR & AED Training to Downey Church & Preschool on Jan 23, 2011.
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